Jul 21, 2018

#Spoonies: New House & Things

Anyway, tl;dr --- I'm now in a disabled-friendly house and haven't been able to leave on my own yet.

more below ...

We've been here a bit over two weeks. We need storage for a lot of what is left hanging out in the moving boxes.

Waldo, our calico cat, is getting adjusted to the new place. She still bolts when she hears anything peculiar or if someone walks into the yard.

I have YET TO LEAVE MY HOUSE FULLY. Not due to illness but because of our gas situation. The week we moved in scheduled to turn it on.

The gas company sends someone who then tells me that he cannot because there is a LEAK.

Inspector eventually shows up to tell us that there needs to be a thermostat on the heating unit in the living room.

So, our landlord Wednesday? comes to remove the heating unit.  Landlord on Friday says we should have received gas that day but..in reality who know? So, we are hoping that someone shows up Monday and sets up the gas.

Since my boyfriend works out in the elements he has to bathe everyday. He's not enjoying the cold showers. Me, I've been bathing every 3-4 days at someone's house.

I still need help with paying for surgery! Please share link

Donate Facebook Pinterest Instagram Twitter | Goodreads

Jul 7, 2018

#Spoonies: 5 Ways I Relieve Migraines




Five ways to possibly relieve migraines. I'm fairly certain these are pretty common ways to try to relieve yourself of the migraine pain. When I have migraines they last for days. Most of mine start at the base of head / neck and stretch outwards toward face. It's fun, don't recommend. I cannot afford to go get shots or another medication to add to the list of meds I already take. 


1. Drink Caffeine

Excedrin Migraine is Acetaminophen, Aspirin and Caffeine. I cannot take Acetaminophen or Aspirin. Before I was diagnosed with Rheumatoid Arthritis my other doctor just drowned me in NSAID's so I'm laying off those for awhile. And aspirin with my other medications can cause kidney problems which I don't want. 

So, I drink tea, coffee or soda to help with the migraine. 

2. Darken surroundings. 

If the migraine comes with sensitivity to light blackout what you can -- close curtains, turn off lights, dim cellphone/computer brightness. I turn down my cellphone and computer to as dark as possible and with the windows blackout and lights off it gives a softer presence and can use it. There is still the migraine and the pain but it's less, especially, if you're still needing to get work done.

3. Pressure. 

I place pressure on my head to help relieve the pain. I press a pillow or lay a blanket on top of my head and it helps dull the pain. I can't walk around with a blanket or pillow smooshed to my head. But when they're this bad I'm not mobile anyway. 

4.  Heat Pad/ Ice pack/ hot shower

I lost my heating pad years ago but I have a heating blanket. I wrap that around my shoulders and neck curled up on the sofa or bed. Ice packs on my neck or forehead .. or both.

 Ice for some migraine sufferers may make it worse....so I'd go slow with that before doing it.

I will also set the heat of my shower to the hottest temperature I can tolerate and let it pour over my neck and head.

5.  Medication

My migraines don't die or quit with over the counter medication. I don't take medication specifically for migraines. But I take muscle relaxers which does help with dulling the migraine. When I do this I also do slow neck stretches/whatever they are that they showed me when I was in physical therapy.


What are ways that you kill or make your migraines tolerable?



I am still in need of donations toward my gallbladder surgery. Sharing the link or donating is appreciated!

Donate Facebook Pinterest Instagram Twitter | Goodreads

Jul 1, 2018

#Spoonie: My Reasons to Stay Alive

Content Warning:  Suicide


Content Note: I wrote this over several days and haven't re-read it so I'm not 100% grammar, spelling or what the hell I wrote about. But I am scheduling it anyway. Good luck.


To other people, it sometimes seems like nothing at all. You are walking around with your head on fire and none can see the flames. And so -- as depression is largely unseen and mysterious -- it is easy for stigma to survive.” - Matt Haig, Reasons to Stay Alive


Inspired by this post. She started hers from Reasons to Stay Alive by Matt Haig.  One piece of the book was to list your reasons to stay alive. Example: one of hers is to watch Elf every Christmas. I read it a few days after she posted. Ever since I've been thinking about it. A few days ago I decided to go back to her blog to let her know.


Four in the morning, Tuesday June 19th I started this. It’s hot and humid, the humidity feels as if it’s trying to melt my bones. My joints disagree with this predicament striking loudly and painfully at this. While I’m laying in bed reading blogs and parts of Rough Justice in an uncomfortable state. When this happens there is no escape.

Some reason when heat gets trapped in the bedroom my medication and their usefulness dies.


Confession: I have suicidal thoughts and struggle with depression. I’ve been this way since I was a child. Before you panic with this information I want you to know I don’t need a pep talk, suicide hotline or reported for at-risk. This is one of those things where the stigma of depression and suicide stops conversations.


“Stigma is particularly cruel for depressives, because stigma affects thoughts and depression is a disease of thoughts.”


For me, suicidal thoughts are more like a gossip who comes along with an oldie thinking it is a goodie. I have no interest in gossip in my mind or with people so it doesn’t work well. Chronic illness has not helped with this, however, I am still here and will be.


At nine or ten, I knew I would not live until twenty-five. Either by my hand or something. It’s possible that my child mind simply thought twenty-five was fuck’old.  For me, I believe having conversations openly can help end the stigma and the isolation.


“... you internalize everything, and you are so scared that people will alienate you further you clam up and don’t speak about it, which is a shame, as speaking about it helps.”


Depression does things to us in different ways. Some of us can reach out for help and get the help without fear or insult. While others we struggle with acceptance, medication and getting the help. Either because of the people in your life, your financial situation or where you live. So, we keep everything within ourselves which does not help but y’know what? We know that and it is still going to happen.



The mentally ill know they are ill. They know they need help. They know. Sometimes the problem is the underestimation of the problem before they’re able to get help because they don’t have anyone to talk with.


“Words -- spoken or written-- are what connect us to the world, and so speaking about it to people, and writing about this stuff, helps connect us to each other, and to our true selves.”


Now, here are some of my reasons for staying alive:

  1. Cool mornings where the sun is clear and I wake up early. I get to sit in this weather on days where I’ve nothing to do.
  2. Writing parts of my stories at my mom’s house while I wait for them to wake up.
  3. Writing stories. I’ve completed many.
  4. Sharing memes and jokes with my boyfriend when we’re home together.
  5. Playing very active games and only slightly guilty for using up the spoons.
  6. Creating things. I crochet, sew and make wreaths beside writing.
  7. Reading. It is an adventure and a fun distraction..even before my chronic illness.
  8. Walks, hiking and anything naturewise I get to do with my family.
  9. My cats! Dogs! And the animals we spend time with to care and rehome when we find them alone/in a bad place.
  10. Having conversations on weird topics.
  11. Creating fictional worlds with my sisters or “what ifs”
  12. Sitting on the porch watching the animals roam around at my mom’s new house.
  13. Arguing. I like to argue. Not the red-face almost putting hands on someone. Just conversations disagreeing/agreeing. Lol. I’m not doing it to prove right what I’m saying (though I do participate in a lot with misinformed people lol).
  14. Teaching. I don’t have a full-time teaching position yet but I love subbing.
  15. My up-and-coming niece who will be released August something. We are slowly planning out my sister’s baby shower. She wants a preggo cake but the kind that would traumatize the kids who will be at the shower.
  16. Just doing everyday things with my family.
  17. Being alone and listening to music
  18. Dancing (I have no rhythm & never learned how to dance lol)
  19. Laughing
  20. Grocery shopping with my sisters


Donate Facebook Pinterest Instagram Twitter | Goodreads

Jun 29, 2018

#FF: Spoonie Blogs


Follow Friday: Blogs I like. June 22, 2018 edition Books and Fandom. Spoonsnbooks.com



Follow Friday: Blogs I like. June 22, 2018 edition Books and Fandom. Spoonsnbooks.com

  • No obligation to follow them or me for this.
  • Can ask me to remove promoting your blog - no worries!
  • No set # of blogs will be listed
  • Blogs will be from Wordpress, Blogger, Tumblr & Others
  • Comments about blogs are either things listed on their blog or what I like about them. 

Spoonie Blogs:

linktr.ee/katethealmostgreat  RA blogger - blogs about makeup and tips & trick, books, etc kinda place

notjusttired.com ME/CFS awareness and blogging about life with it. 

migrainemantras.com     focus on migraines and conversations around them.

Chronic Illness Advocacy & Awareness - not so much a blog but gathers info about Chronic Illness/Advocacy (it's in the name I know). 

thinkingoutloud-sassystyle.com Blogging about life with disabilities 

www.jumbledbrain.com   - brain injury blogger

A Chronic Voice  Chronic Illness and informational type of blog posts

Jun 8, 2018

#FF: Books & Spoonies



Follow Friday Blogs I like. June 8, 2018 edition Books and Spoonies. Spoonsnbooks.com


Follow Friday: Blogs I like. June 8, 2018 edition Books and Spoonies. Spoonsnbooks.com

  • No obligation to follow them or me for this.
  • Can ask me to remove promoting your blog - no worries!
  • No set # of blogs will be listed
  • Blogs will be from Wordpress, Blogger, Tumblr & Others
  • Comments about blogs are either things listed on their blog or what I like about them. 


Books & Spoonies:

fibroqueen.com  Chronic Illness, Advocacy & Positivity

themystiquereader.wordpress.com    Book blogger, participates in fun Tags, blog is COLORFUL 

irelandms.com  Blog about MS , positivity & thoughtful posts


Jun 7, 2018

#Spoonies: To Use Or Not To Use A Cane


Mentally check off if any of these questions apply to you:

Does it hurt to walk or put weight on the leg?

Have you tried everything to still have issues with walking?

Do you use furniture or walls to stay upright?

Did you recently injure your leg and everything just hurts?

Do you struggle up and down stairs or even struggle to step up on a sidewalk?


Congratulations! If you're able to check off any of these – you may need to use a cane.

I understand the concern of getting one because your doctor hasn't suggested it. If you've repeatedly told them that you struggle with walking due to pain or balance and they haven't advised it then what other things are they ignoring that you've told them?

When I started struggling with walking I thought it was a stupid idea to try to use a cane. My doctor didn't say I needed one, so why even think about it? At the time of this thought the whole my doctor doing a half-ass job didn't come into this thought process.

My journey toward using a cane started in my early twenties. Mobility issues IN MY HOUSE? You wouldn't believe it. Honestly, I didn't accept that I needed it no matter what symptoms blossomed in front of me

It didn't make sense for me, a young healthy woman to develop these issues. When trouble started to brew I had a common problem: shitty doctor after shitty doctor. Also, I still thought I was a healthy person with minor problems that would go away if I ignored it (Or over time).

It took almost falls, falls, and brain on fire causing falls for me to accept it. Whether my doctor told me I needed one or not.
 
Shitty doctors prevent better care that you deserve. Doubt that you're not sick enough to use assistance prevents better care that you deserve. Combined, you, me and others live a quarter of the quality of life we deserve or need.

If movement is blemished by balance issues, falls or pain a cane may help alleviate these issues.


Donate Facebook Pinterest Instagram Twitter | Goodreads
Disclaimer: Not a doctor. This is not meant to dictate what you and your doctor has agreed on for your condition. Always consult your doctor or other medical professions you talk with about your health concerns. 

Jun 5, 2018

#Spoonie: Update! She answered!

It took a lot longer than necessary to get through to the financial person to receive the cost of my surgery. But I've learned she does exist and the price of the surgery. I have to pay 2 places for the surgery, one for the facility and the other for the physician.

I updated my YouCaring with what it's going to cost in total. So, it's going to be close to 14K so I rounded. I'm at $80 in donations now and appreciate them all. Thank you! Please, if you can't donate share so I can get this done. I appreciate it so much!
Donate Facebook Pinterest Instagram Twitter | Goodreads

May 31, 2018

#Spoonie: Youcaring / Health Update


Image contains colorful pills and the words: You caring and health updates, #spoonsnbooks and spoonsnbooks.com on a dark pink background



YouCaring Update: I still need donations to help with paying for my surgery. I am at $50 so far. I am super grateful and appreciative of everything. I still haven't got hold of the lady in Financials. I don't know if I could just waltz up to the building to talk with her. But since the school year has ended I feel very tempted to do this.

General Health: I am having to modify my food once more. I've been eating as little as possible to prevent stomach issues. But the last few weeks have been lazy and just eating what's been cooked here. Which is generally spicy and meats I'm not supposed to have. 

Last night my pain levels were terrible that they'd incorporate themselves in my dreams. We had another night storm the room became hellish for me but couldn't do much about it. 

#May: Overview/Wrap Up


Post Count:

I created 67ish posts in May. Nine more than what I created in April. These posts are a combination of book reviews I've read this month, in the past, Spoonie up dates and various off-topic posts. Not everything about May will be in this because I've forgotten or added something since creating this post. I'm compiling it on the 28th.

Comments:

33 this month

Likes:

179

Books I've Finished in May:



Blood Will Out by Jo Treggiari 

The Electrifying story of Multiple Sclerosis by Vanita Oelschlager

Harriet Tubman by Isabel Sanchez Vegara

Georgia O'Keeffee by Isabel Sanchez Vegara 

Great Polar Bear by Carolyn Lesser

If All the World by Joseph Coelho 

Room 119 by T F Lince

Fish-Boy An Inuit Folk Tale by Vanita Oelschlager









The Stereotypical Freaks by Howard Shapiro

Books I've Abandoned in May:


I don't think I've abandoned a book this month. Woo!

Books I've been reading since April:

Or beyond April -

The Forest Beyond the Earth by Matthew S. Cox
A Nighttime of Forever by Matthew S. Cox


Book Reviews in May:

Not including books I read this month. These are just reviews posted.




Sunday Questions:


What are you top 5 reads for 2018 so far? 
How Many Books Are On Your TBR Pile?
Would you rather read digital or paper books?

Weeding Wednesday:







Writing Prompts:






May's Lists, Nat'l Days & Others:





All things Spoonie Updates:




Thanks for reading!


May 27, 2018

#Spoonie: Zoo Trip

Our three day weekend started with waking up and going to the Tulsa Zoo. Tweeted the zoo to find out how to access a wheelchair from them. It costs eight dollars. Fourteen something all together. You return it and get the five dollars back from the experience.

We haven't been here in years there were many updates. Wheelchair was fine. The trip through the was a bit rocky.

Some of the paths aren't even which I'm okay with. It happens nothing is perfect in this world. An aspect of my health problems is pain levels and dealing with that garbage so in parts the roughness was painful.

I worried things wouldn't be fun or manageable if it kept the way it was.

Exhibit buildings were fun. Our zoo is huge but smaller than others but it's still entertaining. Monkeys I hadn't seen the last time I was here. Got to see the giraffes -- usually physically I don't get to see a lot so I'm not 100% if EVERYTHING was new I experienced was simply new to me or new-new.

Some of the facilities the handicap buttons did not work and there wasn't any signs to indicate that they weren't operational. Thankfully, my boyfriend was pushing me around Saturday and was able to maneuver around these issues. We received assistance from other zoo visitors, too, which was a relief as some of the doors were not handicap accessible at all. If I was there alone my navigation would be longer to get to a main door... or asking strangers for help.


The loose animals around the park are very used to human contact. My boyfriend bought us ice cream and was surprised at how much they cost. But they came with in a way...free entertainment. A Peacock quietly watching him silently asking for a share of the ice cream. My boyfriend told him, "I have a feeling you shouldn't have ice cream." But pointed at the fallen pieces anyway. He wasn't going to outright hand over anything but figured if it wanted some he'd have to find it on his own.

He didn't take the hint that food was JUST right there. He eventually wandered away and we were met with two geese. Both calm and waiting for their share of the ice cream. Boyfriend did point, and lift the pieces to him which he did eat.

Thought I took more pictures through our journey inside the zoo but apparently did not.



 I got this little guy, too! Squishy toys and pillows are great little things that I can use to rest my limbs on without much pain. Plus, it's adorable so there's that. But seriously, it can cause bruising and pain if my legs sit on one another, or rest my hands on top of the other. It's really painful, annoying and extremely stupid. Stupid because why do basic normal people thing to do .. cause injury?

So, have another cutie pie arm rest. If cannot tell it's a green/yellow Budgie.







After the zoo we went to my parent's new house. They got the furniture included in the move and it looks and feels super fancy. So, good for them with that. They were having a BBQ to celebrate with the family, etc.

My youngest sister and her family didn't make it as they were on a 3 day camp trip on some lake. I don't remember which one.

My other sisters and nieces were there though. We watched Game Night and Black Panther. Already knew Black Panther was good but Game Night surprised me...hilarious and only smidgen of dirty humor at the beginning of the movie.

Today I caught up on Shadowhunters and I think ..almost done with season 1 of the Librarians.




=

May 9, 2018

#Spoonie: Symptoms of Gallbladder Problems

 Other medical topic posts I've written can be found at this tag: Spoonie
Link to my youcaring account to help pay my surgery costs is here

I am linking to Mayo Clinic for info on everything I'm mentioning in this post. I am not a medical expert this is just lists from Mayo Clinic and my experiences with gallbladder problems. Listen to your doctor with everything overall. Et cetera... y'know the legal spill to not take my blog post as medical expertise/advice. 


Hi!

I wanted to write this blog post about the way gallbladder pain can seem like other things. It's meant for anyone who is thinking something else is going on...but you are saying, "Eh it's probably just ________ ". Because that's what I did and my doctors before my newest doctor did.

It's not always the usual problems you have. It is sometimes something new and wrong and needs to be fixed.

Don't ignore new stuff because of the old stuff. 


So, I'm going to write about my pain problems and how I stupidly thought this was RA, Fibro, IBS, or being lactose intolerant.

Gallbladder problems are common and so is having to have a Cholecystectomy based on quick Google search. That and everyone I've know seems to have had to have it removed or needs it removed.

Overlaps in medical problems and gallbladder problems:

Symptoms of Gallbladder Problems:


  1. Pain  - mid to upper right section of your abdomen. 
  2. Nausea or vomiting 
  3. Fever / Chills
  4. Chronic Diarrhea
  5. Jaundice
  6. Lighter colored stool and dark urine may be signs
  7. Loss of appetite 
  8. Bloating
  9. Gas
  10. Diarrhea or constipation


    Symptoms of lactose intolerance:


    1. Diarrhea
    2. Nausea, sometimes vomiting
    3. Abdominal cramps
    4. Bloating
    5. Gas


      Symptoms of Fibromyalgia:


      1. Pain
      2. Fatigue
      3. Sleep problems
      4. Anxiety/depression
      5. Fibro fog
      6. Headaches
      7. problems with peeing
      8. painful menstrual cramps
      9. Irritable Bowel Syndrome


        Symptoms of Rheumatoid Arthritis:

        1. Joint pain, tenderness, swelling -- in multiple joints
        2. Pain - joints, back or muscles -- all over pain
        3. fatigue
        4. Poor appetite 
        5. Malaise
        6. Fever
        7. Sleep problems

        Symptoms of IBS:

        1. Abdominal pain
        2. Cramping
        3. Bloating
        4. Excess gas
        5. Diarrhea or constipation

        Symptoms of painful periods (for those who experience periods):

        1. Lower back pain
        2. Leg pain
        3. Nausea
        4. Vomiting
        5. Diarrhea
        6. Irritability
        7. Weakness
        8. Cramps lower abdomen
        9. Stomach pain 

        Foods that can cause Gallbladder pain:

        If you are like me and your food consist of : Sweets, spicy and occasionally greasy...the pain may be your gallbladder. These foods can produce pain in your gallbladder. It's not just greasy foods that can trigger the pain. 

        My junk food list may look different from others & why I added "sweets" to this. 

        Junk foods / Sweets:

        Most things you buy in this category are high in fat. So no..
        1. Cookies, even if they are homemade.. oops. I eat A LOT of homemade cookies but wow did I hurt afterwards. I just assumed it was the milk in them, lol. 
        2. Chips
        3. Cakes
        4. other boxed sugary/fatty foods down the snack aisle!
        5. Ice cream -- duh! fatty! look for low-fat/no fat alternatives
        6. CHEESE  -- high fat  -- I LOVE CHEESE.
        7. Nuts -- yep -- I eat a lot of almonds/sunflower seeds. Oops. 
        8. Dark chocolate .. I had to stop eating them cos they caused problems. 
        9. Fried food 
        TBH, if you notice pain from junk food just cut it out because it's not even healthy to begin with. I'm not saying this just because I had to and I want everyone to suffer, I promise. 

        Peppers!!!: 

        1. Any spicy pepper can cause gallbladder pain. 

        It's recommended if you're going to involve peppers in your dish bland ones are the way to go. So, green peppers.

        Meats:

        1. fatty meats - beef and pork. 
        2. Fried meats
        3. Go for leaner meats like turkey and chicken -- at least that's what my doctor suggested. 

        Condiments: 

          Adding this because well, if you're eating a fatty burger... the condiments are going to do you in, too.
          1. Mayo is murderous fat
          2. Spicy mustard  EVERYTHING SPICY IS A NO IT'S AWFUL.
          3. TBH probably ketchup but I don't use ketchup / don't like it ..so this may be slanted against the stuff. 

          Foods to eat and avoid pain:

          1. Fresh fruits and veggies
          2. Whole grain
          3. Lean meats, poutry, fish
          4. Low-fat dairy products



          Now everyone will not have the same food problems. Some of the things that I listed you may be able to eat while others cause you pain.  If you have gallbladder problems and the food that causes you pain isn't listed feel free to comment on this post. I'll add it to the list. 


          If it's increase pain and more frequent.. go see a doctor. 

          Make sure they check your abdomen for physical signs and get blood tests done. I know for those of us who are living the chronic illness life pain is just part of this adventure. But don't just throw it into the "already diagnosed problem" bin because there is a chance it's something else.

          Is the pain intermittent? Chronic?

          If you're experiencing either new pain that is intermittent or always there. It can still be your gallbladder. I experienced pain that came and went so I didn't think of it as NEW or something that I should even pay attention to.

          The symptoms were intermittent for awhile, too. I have went to the ER several times over a span of years recently. But due to Fibro and RA it was quickly written off as easy to fix problem -- stomach bug,etc.

          But I have a lot of symptom overlapping so I can't accurately pin-point when it started getting worse. 

          I just had to stop eating  ____ food so I'm good no reason to see the doctor.

          Thought this, too. Many of my pain symptoms overlap with the various health problems I have. So, when I would see my doctor it was written off to be apart of my other problems.

          A lot of times I would change my diet because I assumed it was an IBS issue or lactose intolerant issue. 

          Chronic pain problem are the norm for me. It's obvious I'll have to deal with pain.

          My advice: Question every new pain that surfaces. Don't convince yourself that it's part of your other medical problems. Talk to your doctor even if they are the kind who'll try to add it into symptoms of your other health issues.

          If it's a new pain problem and the symptoms are similar to what is in the gallbladder pain .. get a physical exam of your abdomen and blood tests done. Your doctor should be able to figure out where the pain was happening in your abdomen.

          My pain "spreads out" so my doctor checked all across my abdomen -- lower, middle and upper. Even my lower back to make sure it wasn't my kidneys. 

          It's just your gallbladder chill out.

          Yes, I thought this, too, until I started experiencing intense and frequent pain than before. I was informed that there was a possibility of it rupturing like the appendix does. Again, I didn't take this issue that serious because I just modified my food intake and everything.

          From my understanding there is no way to fix the problems. But I have a feeling that if you get it checked sooner than mine they can probably slow down the problem.

          Change your diet if it's mostly fatty foods. Even if you're not experiencing gallbladder problem it will help to avoid having this problem. It's a common thing to happen to someone because of the way they eat or if they're overweight. So, avoid even having to worry about this from the start.

          Pain experience can be tolerable to curling up crying because it's all over pain stretched across my abdomen, back and chest. It sucks completely so I'm writing this to help encourage someone to get the new problem checked out to cross out what it could possibly be.

          Anyway, I hope this helps someone. If you have chronic health issues and are experiencing something new... and suspect it's gallbladder/not sure. This is a blog post that is talking about this and see that you're not alone with this kind of experience. 


          Thanks for reading!